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Polycystic Kidney Disease& Kidney Cysts

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PKD & Kidney Cysts

Polycystic kidney disease (PKD) is a group of disorders that result from the formation and progressive enlargement of cysts in the kidneys without dysplasia, usually leading to renal failure.

What Is ARPKD Life Expectancy

2013-07-14 09:23

What Is ARPKD Life ExpectancyAutosomal Recessive Polycystic Kidney Disease (ARPKD) usually presents obvious symptoms infancy, sometimes in children or adolescent. This makes parents urgently find out ARPKD life expectancy. Well then, how long can people live with ARPKD?

An overview of ARPKD

ARPKD is a rare genetic childhood condition that occurs in approximately 1 in 20,000 individuals. Cysts in ARPKD can damage not only kidney function but also liver function in some cases. When the kidney or the live can’t work normally, symptoms of ARPKD may occur. Some of these symptoms are moderate, while some others may be life-threatening. Among them, high blood pressure and loss of lung function are two common symptoms.

The ARPKD life expectancy

It is reported that 70% of newborns diagnosed with ARPKD can survive the first month of life. Babies who die in the first month of life usually have pulmonary hypoplasia. If the baby manages to survive for a month, he/she is more likely to live into adulthood. However, during this time, high blood pressure, kidney failure, liver disease, tiredness and shortness of breath may happen easily.

From the above analysis, we can know besides kidney diseases, high blood pressure, pulmonary hypoplasia and liver disease are also life-threatening factors. All of these risks can affect ARPKD patients’ life expectancy largely.

How to prolong the life expectancy of ARPKD?

Currently, there is no direct treatment for ARPKD. What we can do is to control these children’s symptoms and complications to try our best to extend their life span. For example, if the baby who has ARPKD shows high blood pressure, the doctor may prescribe ACEI which has been widely used to treat high blood pressure for babies and children. However, it may cause some side effects such as tiredness, headache, dizziness, and so on.


If your baby is diagnosed with ARPKD, well control of symptoms and complications is the only way to extend their life expectancy. Once your baby has already had one or more symptoms the above mentioned, you can consult the online doctor and tell him your baby’s condition, so he can give you some suggestions in detail.

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